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Joined: Jun 2010
Posts: 16
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Joined: Jun 2010
Posts: 16
Hi, I am new to this site and to the forum and was just wondering if there is anyone else here living with Multiple Sclerosis? If so please say hello I would love to meet you.



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Joined: Jun 2010
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Amoeba
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I am new, too, and have MS - so we already have 2 things in common. (I have a lot more experience with MS than with computers and forums;}

Joined: Jun 2010
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Hi tucsongirl, sorry for the delay. I totally forgot I posted here. Nice to meet you. I was diagnosed in '93. I am 50 now, so it has been a fun 17 years . . . not! lol



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Amoeba
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I've been checking back here - and had decided our introduction was the virtual equivalent of two people waving at each other on the interstate. lol We're about the same age, me older by 6 yrs, and officially diagnosed in 92 or 93 after almost a year of really scary vision loss, and speech loss ("wrspqin flimloq?") and falling, and terrible pain. Horrendeous damage showed up on subsequent MRI's. So. I'm dealing. How about you?

Joined: Jun 2010
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Posts: 16
Well I'm one of those rare individuals who was diagnosed very quickly. One minute I am in the ER thinking I was suffering consequences from a minor car accident and the next month or two I was told I probably had MS. Are you on Facebook? If so, we should friend one another so that we can do more than wave at one another. LOL

Last edited by Jen's Solitude; 06/24/10 08:38 PM.


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Amoeba
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I don't have facebook. The kids keep telling me about it: Mom you should get facebook. everyone can find you. and you could keep up with your friends. and. and. To which I say: I'm not lost. Everyone I know knows where I'm at. I already keep up with my friends;) To which they say: AAAAHHHHH! aaaahhhhh! AHHHHH! Send me a private msg. on here and let's see if I can retreive it on this wood burning setup I'm using.

Joined: Jun 2010
Posts: 16
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Joined: Jun 2010
Posts: 16
OK, message coming your way tucsongirl. Well, your pm is disabled, you could click on my profile and pm me though, or if you prefer you can e-mail me at the address shown.

Last edited by Jen's Solitude; 06/25/10 01:04 PM.


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Amoeba
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I just added myself as your UBB buddy (whats' this?), you do the same thing and then maybe PM will work. I really don't know what I'm doing. I did try to get onto Hub, but all I see is the top line of the page, the rest is completely blank except for a box that tells me to type 2 words that I cannot see. I guess this means I can add 'browser' problems to my list ha

Joined: Jun 2010
Posts: 16
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Joined: Jun 2010
Posts: 16
LOL, oh my. You can try to refresh the page once you get on and see if the full page will come up. I will now add you to my UBB buddy, I don't know what it is either though. Here goes nothing . . . OK, that didn't work either. LOL

Last edited by Jen's Solitude; 06/26/10 01:32 PM.


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Amoeba
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Well, until we think of a way to get in contact without posting email addresses for the benefit of spammers, we could talk here i.e. Have you tried any helpful meds? I took part in the Berlex Betaseron study for 2.5 yrs of the 3 yr. study. I had to drop out due to depression. I took the shots and had monthly MRI's. I don't know if I was getting placebo, half dose, or full dose. I'm betting against placebo b/c of the onset of the depression, and that the shots seemed to slow the MS. I take baclofen for the spasms. I've had many i.v. methaprednisone infusions, but have stopped taking them b/c I am getting to fragile, weight and bone-wise. And, I have discovered that antivirals shorten the really bad episodes.

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