Hi,
I have been an advocate for 25 years for my son - who was born with Down syndrome and developed insulin dependent diabetes when he was 7. He has grown up to be a bright and interesting adult who had a whole set of plans and goals that were different and more wonderful than I expected when he was young. Recently he has mentioned that he does not expect to accomplish some of those goals, and he is losing interest in doing things that were part of his plan to get to them.
Participating in ordinary life was much different when he had school and extracurricular activities with mainstream friends as well as others growing up with childhood disabilities.
It is a bit of a struggle now ~ managing the paperwork associated with his support programs, the expense of maintaining guardianship, and the restrictions on where he lives and travels seem to be narrowing down his options as well as mine.
Reading different perspectives than other caregivers would probably give me more ideas on how both our lives could be more ... ordinary? Extraordinary?
I am looking for inspiration or at least something that will add a bit more humor and joy to the daily grind. As the new school year starts we are both thinking that nothing new has happened in our lives for a while.
TIA
Pam W
SE of Seattle
Last edited by SNC_Editor_Pam; 08/18/09 05:36 PM.