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Joined: Jun 2005
Posts: 2,454
Koala
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OP
Koala
Joined: Jun 2005
Posts: 2,454 |
I always find some interesting and then unusual search phrases on the autism site. I am always using google with long sentences seeking samples, experiences, etc.
Since it is April and autism awareness month I wanted to highlight the many searches and get feedback on what readers are interested in and specifically looking to read about and see what I can do in these areas.
This list is in no particular order
in home training progress reports first then symbol fabric Emergence: Labeled Autistic behavior contracts organizer free computer for disabled child proprioceptive activities cue cards oral stimulation toys celebrities with autism reciprocal conversations night terrors sensory tables scerts apron inclusion out of compliance pandas still photos suspension tooth brushing pecs icons toothbrushing incidental eaching autism charts and graphs famous people who are autistic potty training picture cards for behavior shaky hands teenage autism food for autistic children walking harness for special kids dyslexia rsp classroom whats the behavior of autism income guidelines for SSI restraints sample drills emotions visually impaired gluten free frosting autism and step families autism care provider self soothing photo of autism victim example of autism victim TV autism fleeting eye contact behavior plans high school macaroni and cheese recipes outdor schedules sample IEP on autism holding bowel movements communication sheet pixter rainsticks service dogs tote bags self injury social stories and autism vaccines autism movie what does it mean to have autism physical activities for autism therapy session strategies autism causes siblings steps on how to feed an autistic child
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Joined: Feb 2008
Posts: 1,272
BellaOnline Editor Chipmunk
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BellaOnline Editor Chipmunk
Joined: Feb 2008
Posts: 1,272 |
Bonnie,
I'd be interested in why there is such a long wait list to see a behavioral pediatrician for having a child evaluated.
Insurance companies now only cover it if it is diagnosed within a certain time based on the medical facilities rules (if I take my child to one facility she has to be diagnosed within the age of four, if I take her to another she has to be diagnosed within the age of six). Meanwhile you're waiting six months or more to get a call and hope that you can get seen before they go to school.
It is frustrating to say the least. Being a mom of three, and other areas of our lives being busy, I've failed getting the process moving along outside of doing an intake call at one facility before my FIL passed away. Setting that aside, however, I also feel the system is failing me. Why should the referal lady at the peds office have to hand me a document with twenty different places to call, where I will be on hold, wait for call backs that never come, do unproductive intake without promised call back in four months etc. It is have if people are just trying to make this go away.
If my daughter had a heart condition she would be seen right away. If she has a mental or learning disability I'm on hold. I'm even near some of the best medical facilities available outside of Philadelphia.
Is it because everybody flocks here, or is there something wrong with the system (not enough doctors, or a way for the system to excuse itself from covering these problems), or are there just that many children with problems?
Those are just some of my questions.
I did write something in daughters and do some links to your site. I have an 18 year old brother with Asperger's and we are hoping to have my daughter ruled out as having it or find out if it is Asperger's or something else she has like ADHD. Having seen my brother grow up though, a lot of the traits are there.
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Joined: Jun 2005
Posts: 2,454
Koala
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Koala
Joined: Jun 2005
Posts: 2,454 |
Good questions Violette. I did read your article and thanks for the links. I think it really depends on the age as you mentioned and also where you reside.
Terms are different in various parts of the country and world. For example I never heard of Behavioral Pediatrician. We have a Developmental Ped who is part of the feeding team, that is funded thru the State of CA.
I thought AS would be diagnosed by a Psychologist or Neurologist. I have several books about adolescents on the spectrum and mostly talking about AS and will browse through them and see if any chapters on the diagnosis process.
What about getting a diagnosis thru the School district? My now 13 year old had his done thru LAUSD and my other son had his thru the state Regional Center. Does she have an IEP, are you wanting school services or home therapy?
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Joined: Jun 2005
Posts: 2,454
Koala
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Koala
Joined: Jun 2005
Posts: 2,454 |
Have you read any books by Tony Atwood? Here are some links I found that might be helpful:
How it is diagnosed
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Joined: Jun 2005
Posts: 2,454
Koala
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Koala
Joined: Jun 2005
Posts: 2,454 |
I looked through my copy of Asperger Syndrome and Adolescence: Helping preteens and teens get ready fot the real world. This seems to be geared for those who already have a diagnosis and do not mention it at all.
The Asperger's Answer Book - the top 300 questions parents ask by Susan Ashley, Ph.D. has this on the back cover:
What symptoms signal that my child should be evaluated?
What tests are used to diagnose Asperger's Disorder?
Chapter 2 goes from page 27 to 53 and is entitled, Getting your child evaluated.
what type of dr should evaluate my chikld?
Pediatricians Dev Peds Psychiatrists PEdiatric Neurologists Clinical Psychologists Pediatric Neuropsychologists Educational Psychologists
DSM-IV-TR
Chapter 3 is co-existing disorders and covers ADHD, ADD and OCD plus many others.
I would look for this book
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Joined: Feb 2008
Posts: 1,272
BellaOnline Editor Chipmunk
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BellaOnline Editor Chipmunk
Joined: Feb 2008
Posts: 1,272 |
Hi Bonnie, she is four and not in school yet. I think I wrote down the wrong thing, it is Developmental Ped.
Thanks for the info on the books and articles.
We just wanted to pinpoint if it was Asperger's, as she is a handful. She has been doing better in a two-day a week preschool setting (halfdays). Most times she is a handful at home. Listening is an issue, trying to keep her on focus when you try to talk to her.
Then the little things they said she would grow out of a few years ago, rocking to settle her self, chanting, now she spins and runs in circles.
She is smart and the preschool pointed out that her artwork was telling in that she draws above what is expected of her age.
Thank you so much for the links as I'll be going through them and maybe if I can handle the next intake better we will get seen. My husband thinks maybe I didn't present the information well enough or something. Short of sending them a video of her I don't know what else I could have done to speed this along. There seems to be so many barriers to getting seen.
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Joined: Jun 2005
Posts: 2,454
Koala
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Koala
Joined: Jun 2005
Posts: 2,454 |
I looked over your bio to get the ages of your girls and assumed it was the 11 year old since your article on autism and girls specified middle school.
Are you leaning toward AS over autism because of the family genetics? The best way would be for the school district to do an assessment, when she enters the system. Also what about her diet and sensory issues?
I would look at the article I wrote about two books if you suspect autism:
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Joined: Jun 2005
Posts: 2,454
Koala
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OP
Koala
Joined: Jun 2005
Posts: 2,454 |
Here are some more searches on the site to note and keep in one place:
sleep disorder transition plan sorting autism anesthesia weighted pens picture of autism emergency kit letters of recommendation picture cues potty training, IEP apology letter assessment tools iep assessment mood disorders making social stories and comics rowing DDT flow chart task analysis morning routine IEPs for social skills childhood degenerative disease autism t shirts
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Joined: Jun 2005
Posts: 2,454
Koala
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OP
Koala
Joined: Jun 2005
Posts: 2,454 |
more searches to store and note what to write on next:
re evaluations behavior picture support types of technology breathing issues Herbalife celebrity dads brushing technique velvasoft deep pressure vest natural learning concepts Past Present Symptoms visually impair modification oreo sorting game my friend has autism Potty Training autistic students
autism society of nc tactile fidgets transitioning to high school what if there is no aide assessment tools
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Joined: Jun 2005
Posts: 2,454
Koala
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Koala
Joined: Jun 2005
Posts: 2,454 |
Here are the latest batch of searches:
picture schedule definition living trust adopt menus Drug Information trusts case study flyers workbook window colodine - this one I guess should be clonodine divorce and autism tics autistic tendencies pill id chart attwwood - this would be for Tony Atwood albany ny swim autism forum single parent sarcadosis - should be Sarcoidosis BellaOnline ALERT: Raw URLs are not allowed in these forums for security reasons. Please use UBB code. If you don't know how to do UBB code just post here for help - we will help out!
Last edited by Bonnie, Autism Editor; 08/15/08 06:55 PM.
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Joined: Jun 2005
Posts: 2,454
Koala
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Koala
Joined: Jun 2005
Posts: 2,454 |
Here are some more - good place to store them for reminders of article topics and let others know what is being searched.
autism social story samples Camp New Connections vaccines porta board swimming with dolphins foodchain of goldfish teach2talk snow cake behavior inputs to self concept autism how to teach emotions sex education down syndrome adults zoloft jumping bathing speech activities for children with autism article on asperger learning activities tacos joey travolta
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Joined: Jun 2005
Posts: 2,454
Koala
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Koala
Joined: Jun 2005
Posts: 2,454 |
some of the latest searches:
Daily Activities for Adults with autism autism not eating autism Home Safety isolated Jason McElwain iep self help skills objectives and annual goals shoebox activities (researching this for an article) a very special sister (maybe the title to a book) examples of ojectives in IEP's self help skills visuals shoes vocational assessment met autism cmh (I have no idea what that means) gesture journal IEP Goals and Progress Reports forms sticker chart twins and autism spectrum disorder observation forms lunch tray self help messy buns (not going to write about that)
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Joined: Jun 2005
Posts: 2,454
Koala
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OP
Koala
Joined: Jun 2005
Posts: 2,454 |
some more searches from this month:
shampoo cap north dakota helping siblings with autism Struggles with homework visuals current events adhd pecs functon aspberger syndrome (asperger) bathing getting off the bottle autism northern rabbits business cards screaming child lyrica pins moe picture cards for children with autism
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Joined: Aug 2008
Posts: 170
Jellyfish
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Jellyfish
Joined: Aug 2008
Posts: 170 |
Maybe I'm skimming too fast, but I see ONE search related to physical health/diet ("menus"). That's disturbing. People have no flaming clue about the nutrition-neurology connection... which doesn't just affect or help kids in the spectrum--but all kinds of kids.
GRRRRR!!!
Heather DeGeorge
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Joined: Jun 2005
Posts: 2,454
Koala
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OP
Koala
Joined: Jun 2005
Posts: 2,454 |
Here are some more searches I want to save:
headbanging stimy sleep firm hand scarf Big Brother Dustin letters from teachers to parents about halloween apply for a grant pecs Autism Speaks taking a bath instructions paraprofessional support and roles self regulate non verbal autistic children olga barney song magic banjo colleen Moore, RN reinforcer survey reinforcement survey pdd-nos
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Joined: Jun 2005
Posts: 2,454
Koala
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OP
Koala
Joined: Jun 2005
Posts: 2,454 |
Dec searches
True Object Based Icons indian gf df - probably meant cf asbergers - people need to use correct spelling glutathione decrease self stim sheryl plates - not sure who she is ornament haircut monster walter dean myers - not sure what this means signs of autism communication devices devices functional behavior assessment chicken pox leap frog report card oral chew toys chew toys autism trip complex child camps nj marvins magic buttoning visual aides zippo brushing teeth insurance learn to knit pecs book martial arts toys books melatonin autism autism test compulsive diapers gluten free diet asperger syndrome crochet toy disney pixar shake n go cars chores
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Joined: Jun 2005
Posts: 2,454
Koala
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OP
Koala
Joined: Jun 2005
Posts: 2,454 |
hear are the latest searches
autism speaks terminology colitis kids making friends sexuality disorders doug moes speak with me books doctor kathie harrington PECS ON FEELINGS AND EMOTIONS car toys HAPPY PECS SAMPLE pain scoliosis charts and graphs charts and graphs of autism ELD goals social skills activities Special Education Assessment Plan Illinois eye blinking adhd autism spot respite aba shoe tying video vaccine shake n go cars
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