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Joined: Jun 2005
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I had my 11 year old son Nicholas's IEP this past week and later on that day read over the IEP with him. I am wondering if next year is a good time to introduce him into the IEP meeting. He will be in fifth grade and we will be discussing middle school and it is his triennial again.

What age did your child start attending their IEP? Did you base this on grade or age? I asked at a LAUSD IEP workshop this past week and they stated there was no set age they have to participate, which I thought maybe they did.

What is the criteria, if any, in your district or State? Has the IEP meeting been a positive or a confusing experience for your child, who may be an adult at this point in time?

Also for those on the spectrum, what age did you first join into the meeting and how did you participate? Anything you can share would be great for parents to prepare.


Bonnie Sayers - Autism Editor

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I inadvertantly had a situation occur where My then 10 year old was present during an IEP. I won't go into all of it, but I was basically "railroaded by the then resource teacher and councelors to have a meeting, "since I was there." The original purpose of the visit had been planned and stated as a rehearsal for my daughter to eet the teachers and see the classrooms where she would be for fifth grade.

As the meeting progressed (against my repeated expressed concerns about not being notified, nor accompanied by a mentor or prepared with materials at hand.) My daughter became very aggitated and finally asked to leave the room to sit in the hall. She gets very distressed when the subject of her aspergers comes up. I think it will be a long time coming before she is ready, if ever.

Individual kids are all different. How does your son feel about what he has? Have you involved him in the planning for treatment with his doctor (We do ask Melinda for her input with the doctor --It is all about how she FEELS) Ask if he wants to participate, and make sure he has an idea what the meetings are like. If he seems to WANT TO then he may be ready. If he really doesn't have an interest, then you may end up having to deal with a really bored kid, or worse an upset one, during an important meeting.

I hope all goes well with your IEP's. I have found that our system isn't very forth comingin helping or being helpful. I have had to fight for every little thing. Even a set of books were denied my child, until I got a mentor through the Parent training and learning center, run through Our autism advocacy group.

It turns out all states are required to have some sort of traing center for parent to learn how to handle IEP's. The hard part will be finding where your's is. I had to do a lot of serious detective work to find ours.

Sincerely, Ginger.

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My daughter is attending her first IEP next week at age 14. Our school system does not require they attend an IEP until they transition into high school (9th) grade. She is scared to death. She doesn't like people to discuss her disability openly like that (even though she now tells me she's proud to be autistic) or make decisions for her. I personally am afraid for her to attend because these meetings have been particularly nasty in the past. I tend to feel tag teamed and I am calling the superintendant this week to attend with me, he's pro special needs.

I just don't think I would let her go until she is ready.

Christina


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