Yikes, thanks .......um......I forgot I posted this LOL!
I now have letters written in my behalf by others who have known me since 6th grade!
Actually, I was in the Cedar Park area just before Christmas and had hoped to meet one of the members. I am ready to make a stand on this and do anything to bring this to awareness.
While there, totally got slammed but at least I got to be with a most beloved life long friend.
While there tho, I wondered (one of those what if's moments), if chicken pox virus can cause shingles later in life, what if there is such a thing that lies dormant with fibro as well and is triggered?
I am going for and yet another MRI in the morning, also, and EEG, the latter first one.
Now it is to the point I have to take a cab.....losses continue and still haven't heard anything.
We will see. Probably an entirely new galaxy in my head =)
While in Texas tho, when got up I would head forward and go left........looked like a danged cartoon.
Fortunately my friends know me so they didn't act as if I was goofy LOL........but I am concerned about many things with this situation.
While there, not only did I lose my ability to move the direction I wanted too, but I totally slipped, slid into an ironing board like it was home plate , caught my self with my right hand and thought I broke my finger and caught the iron with the left one burning four fingers......You gotta laugh.....One hand puffed up like Minnie Mouse and the other looked like I was giving the bird.....'minnie mouse, screw you, minnie mouse, screw you.....'
My friends husband came home and I told him to pull my finger at which point his look was 'gads, you don't do that too do you?' and I had to laugh and say 'NO REALLY PULL IT ' and he did, it snapped back into place and just swelled. Took all the wrinkles out tho!
Here is where I am concerned. Not only can one injure themselves but since so many symptoms are with fibro, how does one know when to see a doc?
Theoretically, you could miss an impending heart attack or UTI or something else because one could assume easily its fibro related and that really bothers me.
We can't 'camp' at the doc's ofc. And this is why I am really turning into a pitbull with this.
I have to wonder how many people are diagnosed with depression and have fibro, diagnosed with fibro and labled as depression and then those who ultimately end up with both?
I really want to become pro-active when I can but I dont know how.
I have written officials, DC etc and all the talk shows and of course that was a lame duck.
Oh, btw, thanks for the link. I do journal and I will utilize that.
yikes, turned into a vent......somedays I just circle the drain......heh heh.