I can understand the frustration. I feel it too. It hurts to not be believed. I know I suffer with this disease and have great respect for those who do too.
It's even tougher when the medical community can't seem to get a handle on it either. I almost feel like I am educating my doctor on the disease...(hey, maybe he'll start paying me :-)
Next year, we'll have a grand ole 'event' for Fibro/CFS Awareness Day here at http://www.bellaonline.com/site/FIBCFS.
I feel bad that I didn't know about this sooner. Otherwise, I would have done it this year.
Maybe, I'll give a t-shirt away!!!