BellaOnline Forums Family Special Needs Children Newbee

Hi am new to the forum, just wanted to introduce myself...My name is Keri and I am a mutated carrier of Fragile X Syndrome. Therefore I have two sons that have Fragile X....(a hereditary disorder that causes characteristics of other disabilities) For my son Matt it has caused him to seem like a very high functioning, verbal autistic child that has ADHD and communication disorder and Tourettes Syndrome. For my other son Jake it has caused him to seem like a lower functioing, limited verbal Autistic child with seizure disorder. I also have a 9 yr old daughter Sarah and a 14 yr odl stepdaughter Jerrica. I am a full time mom and my husband is a farmer.....I enjoy reading, gardening and my kids. <img src="/images/graemlins/smile.gif" alt="" />
I hope to get to know everyone here!

Hi! I got your reply to my posting and then i read yours, we have alot in common. I am soooo glad to have someone to chat with about this. I also have an older daughter who is 'typically developing'. She's almost 11, and it can be so hard at times. She loves her brother, but it does get frustrating for her, because he 'gets away' with so much more. How do your daughters cope? We also have a farm, even though we aren't true farmers, it is more of a hobby, but i am so thankful to have the animals for the kids, do your animals play a part in your boys daily routine? my son used to be very rough, not understanding, and now he is sooo gentle and caring and i credit that to having animals around constantly.

If you dont mind me asking, how did they finally diagnose your boys? what type of test was it? sometimes i will read something or see something and call my doctor and ask for him to be tested, but nothing has turned up yet, and they seem to be all out of answers. I feel that i am getting to the point where we need to back off for a bit, but i dont want to miss a chance at diagnosing him at the same time. We are near Boston, so i feel our team is competant, just totally stumped which is sooo aggrivating.

Do you have any friends with special needs kids? Have you linked up with other moms from school at all? I tried to in the beginning, going to breakfast with pre-school moms and things, but since he is in an integrated classroom, he is making friends with mostly typically developing kids, and its so hard when they invite him to play, or to sleep over. I just cannot leave him alone at someone's house yet, so i havent really made friends with many moms. They probably think i am antisocial. I have one friend with a son with CP and shes a sweetheart but sooo depressing! I have been thru many bouts of being depressed about Logan, but right now, he is healthy and happy, so what more can i ask. I really need to stay talking with upbeat people.

I will definatly yahoo message you if that's okay, mine is psssst_its_me_ally. Talk to you soon!! ~Allyson

Hi Keri!!

So sorry it took me forever and a day to respond. I feel like this year has lasted a decade, you know?

Even though it's been a month, I'd like to officially welcome you to the forum. It sounds like you have a lot to offer in advice and support and we welcome it.

I enjoy reading, gardening, and my kids too, lol. I can't tell you how glad I am that summer sports are coming to a close, unfortunately, allergy season is terrible this year and poor Greyde is bouncing off the walls more than usual, lol. Gotta love'em...hehehe <img src="/images/graemlins/laugh.gif" alt="" /> .

Take care,

Chele
Special Needs Children
specialneedschildren@bellaonline.com