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Joined: Dec 2004
Posts: 1,161
Parakeet
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Parakeet
Joined: Dec 2004
Posts: 1,161
My husband died of CF on June 18, 2005, 3 days before his 40th birthday. His sister died at age 18 from CF. He wrote this wonderful story about their lives:

The Dreamer

Here's some background info on the symbolism in the story:

A Tribute To A Great Dreamer

I'm thinking about having the story published as a children's book for kids with CF or other chronic, terminal disabilities.

Thoughts?

Last edited by Parthena - Dreams Editor; 06/28/05 11:07 AM.
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Joined: Jun 2005
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Thank you for sharing your story, and your husbands story. One of my daughter's elementary school classmates had CF and I learned so much from her mother, not just about the condition, but about how a richness of experience adds so much to everyone's quality of life.

Please accept my sympathies on the passing of your husband.

Pam W
SE of Seattle

Joined: Dec 2004
Posts: 1,161
Parakeet
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Parakeet
Joined: Dec 2004
Posts: 1,161
Quote:
Thank you for sharing your story, and your husbands story. One of my daughter's elementary school classmates had CF and I learned so much from her mother, not just about the condition, but about how a richness of experience adds so much to everyone's quality of life.

Please accept my sympathies on the passing of your husband.

Pam W
SE of Seattle


Thank you. He was a wonderful human being. I've learned a lot in the past two weeks from his parents about how these disabilities impact the entire family.

I have lots of projects planned to honor Joe's memory, but most of all my goal is to raise awareness about CF and families with special needs in general.


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