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#782814 - 09/16/12 02:56 AM Chronic Sorrow and Childhood Disabilities
SNC_Editor_Pam Offline

BellaOnline Editor
Chipmunk

Registered: 06/11/05
Posts: 1429
Loc: SE of Seattle
Intermittent sadness can last for days or weeks after a new diagnosis or a troubling event. Sometimes feelings can be overwhelming and we can lose sight of the possibility of future happiness or options that we never imagined.

The symptoms of depression in mothers of children with disabilities are not acknowledged or understood in the same way as a physical injury requiring treatment and accommodations. Mothers of children with disabilities have been said to experience chronic sorrow that intrudes into otherwise happy lives.

Please seek help for depression or hopelessness. You are a very important person and deserve support and encouragement to get you through difficult times.

Chronic Sorrow and Childhood Disabilities
http://www.bellaonline.com/articles/art173469.asp

Pam W
SE of Seattle

_________________________
Pamela Wilson - Children with Special Needs Editor
Visit the Children with Special Needs Website

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#782827 - 09/16/12 05:56 AM Re: Chronic Sorrow and Childhood Disabilities [Re: SNC_Editor_Pam]
Burt B. Offline
Chipmunk

Registered: 09/08/11
Posts: 1855
Hi Pamela,

I've been bi-polar since 16yrs. and in and out of mental institutions and jail all my life.

My Mother bore a great burden.

Thank You for putting out this information.

Although childless by choice myself, I would like to add my voice to the clarion call to all of you moms out there !

Please, Please, Please avail yourself of as much help as you can !

If I was born in this day and time, my mom would have been able to cope much better.

As was mentioned in the article, Postpartum is more acknowledged and understood these days.

Environment, biochemical toxins, and genetics led to my downfall.

Please secure your emotional, financial, and extended network of family and friends before you take on the responsibility of another life !

Just like the birds, build the nest first.

Easy for me to talk... yes.

However, with the great amount mental and physical suffering I endured -- much of it could have been prevented.

It took me well over 40 years to sort out what happened and why.

Many times by just sitting quietly and thinking.

Now, pick up the torch that Pamela has set forth and run with it !

You can do better.

I know you can.

Sincerely,

Burt B.


Edited by Burt B. (09/16/12 05:56 AM)
_________________________
two cat you na versity

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#783982 - 09/25/12 01:49 AM Re: Chronic Sorrow and Childhood Disabilities [Re: Burt B.]
SNC_Editor_Pam Offline

BellaOnline Editor
Chipmunk

Registered: 06/11/05
Posts: 1429
Loc: SE of Seattle
Although so much more is known about how to support mothers and families struggling with emotional challenges and complicated living situations, it can be terribly difficult for individuals to find resources in their communities that develop into long term solutions. One of the problems with segregated special education programs is that they can be in locations distant from neighborhood schools and they can be moved whenever classrooms are needed by mainstream students or other programs.

Even when children are included in regular classrooms in their neighborhood schools, families may move from place to place as financial circumstances improve or deteriorate. Providing opportunities outside of schools where children and teens from throughout the community can participate no matter what their circumstances or housing changes is possible through parks department or library programs, non-profits, small businesses and national chains. Healthy communities encourage inclusive neighborhood playgroups, sports leagues, Campfire groups and other child-centered organizations.

Individuals can be overwhelmed by difficulties, isolation, and a random series of setbacks even in a community with all the opportunities that we wish were available to everyone. Hanging on and getting to the next better day is an important survival skill even when that is not recognized as resilience.

The best remedy for chronic sorrow may be having life go improbably right.

Pam W
SE of Seattle

Childhood Disability and Supporting Other Mothers
http://www.bellaonline.com/articles/art59660.asp
_________________________
Pamela Wilson - Children with Special Needs Editor
Visit the Children with Special Needs Website

Top
#795192 - 12/04/12 05:25 AM Re: Chronic Sorrow and Childhood Disabilities [Re: SNC_Editor_Pam]
SNC_Editor_Pam Offline

BellaOnline Editor
Chipmunk

Registered: 06/11/05
Posts: 1429
Loc: SE of Seattle
It is more common for families of individuals with Down syndrome I've known to report increased resilience and unexpected joy than chronic sorrow. I have long thought this is due to the increased opportunities available, peer friendships, and community support children find as they grow up.

Although every mainstream parent has 'if only' and 'what if' moments, sometimes both the highs and lows in the life of a parent raising a son or daughter with Down syndrome can bring on stronger emotions.

I love the reference to chronic sadness in this article:
Loving a Child on the Fringe
By Cristina Nehring
http://slate.me/VdU8n1
Quote:
... There are reasons to think the future could be harder�not easier�than the present.
But while certain experts (repeatedly quoted by Solomon) have suggested that this leads to �chronic sadness� in parents of children with Down syndrome, I find it leads to �chronic carpe diem��a chronic desire to seize the day and wring the best possible from every moment�and from myself. ...


Pam W
SE of Seattle

Chronic Sorrow and Childhood Disabilities
http://www.bellaonline.com/articles/art173469.asp

Originally Posted By: SNC_Editor_Pam
Intermittent sadness can last for days or weeks after a new diagnosis or a troubling event. Sometimes feelings can be overwhelming and we can lose sight of the possibility of future happiness or options that we never imagined.

The symptoms of depression in mothers of children with disabilities are not acknowledged or understood in the same way as a physical injury requiring treatment and accommodations. Mothers of children with disabilities have been said to experience chronic sorrow that intrudes into otherwise happy lives.

Please seek help for depression or hopelessness. You are a very important person and deserve support and encouragement to get you through difficult times.
_________________________
Pamela Wilson - Children with Special Needs Editor
Visit the Children with Special Needs Website

Top

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