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#186402 04/13/05 12:06 PM
Joined: Apr 2002
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Eva Offline
Zebra
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Oh Butterfly, what can I do to help ?

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#186403 04/13/05 03:22 PM
Joined: Jan 2004
Posts: 748
Gecko
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Gecko
Joined: Jan 2004
Posts: 748
You're so very sweet, all of you! I'm doing great actually. I'm still smiling. I'm pretty strong, i'll continue to do what is necessary. My attitude is up, things with hubby are turning around. i have too much to be happy about to get down, i sappose. i WILL NOT let this get the best of me. i will do what the doctor says, i will follow her advice to the letter, get my treatments, and keep a good attitude. i'm taking courage in the fact that lots and lots of people live normal lives with this. and i am determined to do the same. i will not let this have me.
i'm so thankful that i have you guys! you've NO idea what you mean to me. **kiss kiss**


Melissa
#186404 04/13/05 08:03 PM
Joined: Feb 2005
Posts: 42
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Great attitude. You can live a very normal life. Just make up your mind that you are in charge.

Crescent_Moon

#186405 04/13/05 09:38 PM
Joined: Apr 2002
Posts: 3,291
Eva Offline
Zebra
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Butterfly, I am so glad. Now about that Husband situation I know you didn't ask me but here is my opinion: "don't let all that training go to waste" hehehehehe. Meaning you probably almost got him trained ok all kidding aside and on a more serious note, I am really happy to hear that.

#186406 04/14/05 02:57 PM
Joined: Jan 2004
Posts: 748
Gecko
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Gecko
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Posts: 748
well..its sad i had to "rock his world" to get his attention (by putting him out of the house), but it seems to be working. he knows i'm serious, and seems to be taking steps to correct his destructive behavior. we're still living apart, and will remain apart for some time. until, that is, i feel that we are ready, and i'm satisfied that necessary changes are in place. he's going to church with me now (which he's never done before), he's working too. some have said "he's doing that just to get back in your good graces, and it will change if you let him come home." could be true....that's why he's not home now. and will not come home until i'm ready, and i think he's capable of living up to his responsibilities. we're still in counseling, and that is going well. all is well.


Melissa
#186407 04/14/05 04:56 PM
Joined: Apr 2002
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Eva Offline
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Well Butterfly, I'm going to think very positively and continue to think that he certainly knows what he stands to loose. You are a sweet, loving, person and just remember no matter what you decide to do I'm behind you 100% <img src="/images/graemlins/smile.gif" alt="" />

#186408 04/14/05 07:11 PM
Joined: Dec 2004
Posts: 744
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Gecko
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Good for you! I think you are taking the correct steps and being very wise.
Best wishes,
Grace

#186409 04/15/05 01:48 PM
Joined: Jan 2005
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hi butterfly..i have been reading some of your posts and i have to tell you that you are helping me along the way with your afflictment of ra...my daughter also has just been diagnosed with the same and has just found out she is pregnant besides...i am so happy to hear your husband is reaching out to you to be there for you as this is so important....

#186410 04/25/05 09:26 PM
Joined: Feb 2005
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Hello Butterfly,
Stay strong, you have a great attitude. My husband and I quit smoking together last October. It was extremely hard. But we were determined. Problem is we both "enjoyed" smoking. But we did succeed. I made a deal that if I quit smoking I would find something else to do with my hands and money! Guess what I chose...Crochet! I am still learning and finding all kinds of great patterns no where near what you guys are doing..but I love it. I will say a prayer for you and your husband. God Bless and keep your wonderful attitude!

#186411 04/26/05 04:02 AM
Joined: Jan 2004
Posts: 748
Gecko
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Gecko
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Posts: 748
Thanks a lot for the kind words! they mean loads at times like this.

It's a quarter of 3:00am, as you can see. after i took the second round of mexotrexate last week, i've been virtually pain free. that stuff is a miricle drug! but alas, the stretch of good days must come to an end. that and the drug is wearing off, and i guess my body is telling me its time for a dose. but since i have my first remicade infusion today, i think i'll wait and ask the dr. if i should still take it today or wait till tomorrow.
i'm reallllly nervous about the remicade. i've read good and bad. maybe i shouldn't have. i'm glad i took the whole day off for it. i'm sapposed to get a big push of benedryl before the meds, appearantly thats pretty standard. so i'll be like a sheet in the wind when i come out of there. i was gonna go it alone today, but after learning that, i decided maybe i should take some one to drive me home. the hospital is about 40 miles from here, thought it might not be safe. my left shoulder is killing me, woke me up, and i have to prop it up to type. i say that not for sympathy, but because its probably danged funny to see. like the time i missed the bed coming back from a late night break. i hurt myself, yeah...but the mental picture i got of me falling head first into the shoe rack in pitch dark was too much.
i'm wondering if i should take my crochet...ever try to crochet when you're strung out on benedryl? i have... <img src="/images/graemlins/smile.gif" alt="" /> ...lol
i'll leave it right there. by the time you guys read this, i'll be hooked up. send up a quickie for me.


Melissa
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