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#106744 09/17/02 04:37 PM
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It's funny, I saw your article in passing on Sunday and thought, "Hmmmm it's around New England, glad I haven't gotten it." But then just today I heard from my friend that I went biking on Block Island on Saturday with. Apparently she got bitten by a Lyme-disease-tick out there! She's already been to the doctor and is on antibiotics. I woke up Sunday with a red swelling on my leg, and my boyfriend was even examining it curiously that night. But I figured it was just a bug bite. Now I'm thinking maybe I should have myself looked at too!

She says she had the bullseye forming which is why she went in. Mine is just a red bump. So maybe I'm being over cautious. But I was with her every moment on Saturday, so it's really thought-provoking for me that she had a tick get on her during one of our walks ... I imagine that I probably did too.

My mom says a friend of hers got Bell's Palsey from Lyme ...


P. Pureheart
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#106745 09/17/02 05:09 PM
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There's no harm in being tested <img src="/images/graemlins/smile.gif" alt="" /> Less than 50% of Lyme cases actually present with bumps or rashes or bull's eyes. I didn't, neither did my mom. We had Lyme for 8 years before we discovered it. As a result, we've both got it for life (I've had it 15 years and counting).

Don't be fooled by the bull's eye--it's definitely NOT the #1 indicator of Lyme--a small rash could be Lyme too. Or no rash! Better safe than sorry <img src="/images/graemlins/smile.gif" alt="" />

If you catch it this early, you can cure it. Make sure your doctor gives you a good dose of meds, 6+weeks, and have a urine test at the end (urine tests can show dead antigens to prove the meds have done their job). You might want to go with the urine test for an initial diagnosis, too, rather than the blood test--but blood tests could be more accurate now. They were very inaccurate when I was first diagnosed, and as a result I stick with the urine tests (it's a 3 day test with 5 days of antibiotics, typically).

Good luck <img src="/images/graemlins/smile.gif" alt="" />

#106746 09/17/02 05:55 PM
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I really hate giving blood so I would much rather do a urine test if that's available. I guess I'll see what they say when I call in the morning.

So there's a certain period of time that they can 'cure' you in and after that you're stuck? Did it end up causing you real harm or it more of just an annoyance?


P. Pureheart
#106747 09/17/02 06:11 PM
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Quote:
Originally posted by Computer Games:
[qb]I really hate giving blood so I would much rather do a urine test if that's available. I guess I'll see what they say when I call in the morning.[/qb]
Ask your doctor if the lab he/she uses has the urine test for lyme available...hopefully it will be! Otherwise, I don't remember it being a huge amount of blood required for the test--1 vial, if memory serves <img src="/images/graemlins/smile.gif" alt="" />

[qb]
Quote:
So there's a certain period of time that they can 'cure' you in and after that you're stuck? Did it end up causing you real harm or it more of just an annoyance?[/qb]
Yes and no. Yes, there's a certain time in which they can 'cure' you--this never used to be true, we were always told once you have Lyme, you always do. The feeling has since changed, that you can be cured immediately (i.e. within the first couple months of treatment) if you catch it early. Which is good news!!

It did cause me real harm, my mother two. We both have lesions on our brains, her moreso than me. I have arthritic joints now. If left untreated for a long time it can mimic alzheimers, destroy heart tissue, and generally shut your body down. It's a very serious disease in the longrun. My mother and I "relapse" every few years, but the rest of the time it's dormant--thank goodness!

I don't mean to scare you. Certainly some Lyme cases never get that serious <img src="/images/graemlins/smile.gif" alt="" /> It's just the facts--it's a nasty disease--but thankfully we have treatment and now it's believed we have the cure--early treatment!

#106748 09/18/02 12:40 AM
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Wow, that is pretty serious! And this is from a bite that you might not even notice? No wonder I was reading that 90% of people with Lyme disease might not even know they have it yet, if it affects you after a while and in ways that aren't necessarily obvious.

They should just sell a urine test over the counter so that people could take it ever few months if they live in Lyme-rich areas. That way they could just test themselves occasionally and if they see they've been bitten, go in for the treatment.

I'll call in the morning and see if I can get myself tested!

Thanks so much for the information!


P. Pureheart

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