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Joined: Jul 2009
Posts: 213
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Joined: Jul 2009
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My journal has become a trip to the Whine Cellar for sure...

I was diagnosed with fibromyalgia in 2000. Lately my pain has gotten like 100% worse, and I have started to lose my hair... in big ugly clumps and bald spots. I worried because both my mother and her sister, my aunt, had lupus. I had a pile of labs done last week... I finally got a call from the doctor's office... the nurse told me that my labs were back, and the ANA was positive. "Does that mean I have lupus?" I asked and she said well, he didn't want to say for sure since it was a low titer number although it was positive, and he wanted to "just keep an eye on it" for now. So I guess I'm still in limbo. I may or may not have lupus… I hate the not knowing! All my other labs, she said, were okay. So I get to wait. Again. Or still. I want to know exactly what I'm dealing with so I can deal with it, come to terms with it, all that owning a situation and taking my power back stuff, you know?

Ever think Hell is probably just a big old for-ƒʁƐ@Ҝ!И₲-ever waiting room, kinda like the New York DMV or something?

My journal is a big old whine festival, a Rant Receptacle.... and an absolute lifesaver. Has anyone else found their journal to be a help in a health problem like that? wall


Be Well,
Doxi
Founder & Chief Whiner
S.N.E.R.T.s
Survivors of Nearly Every Rotten Thing
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Joined: Jul 2009
Posts: 213
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Joined: Jul 2009
Posts: 213
A dear friend of mine kept a journal throughout her ordeal with breast cancer. She said she got the idea from my journal writing. She said it was a big help to her in coping with it all.

I was honored when she asked me to read it. It was truly wonderful. I told her she owed me a box of tissues because all the laughing and crying I did made my nose run!


Be Well,
Doxi
Founder & Chief Whiner
S.N.E.R.T.s
Survivors of Nearly Every Rotten Thing

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