Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. By becoming involved in research, whether as a participant, or through fundraising and advocacy, you can help to support ongoing research efforts in neuromuscular disease.
Not me. I have fibromyalgia and the meds the doctor gave me in the early 90's nearly crippled me. But I would donate and help raise awareness. I took matters into my own hands. I cut way down on the sugar, lost weight and slowly took myself off the meds.
Thanks for sharing your experience, Jana. It is important to be active in our own health care!
Remember, not all clinical research involves medication trials. Some involves other aspects of diagnosis and/or care (i.e., family health history, genetics).
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