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Joined: Jul 2010
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Clinical trials involve experimental research in order to find more effective treatments and/or cures for disease. By becoming involved in research, whether as a participant, or through fundraising and advocacy, you can help to support ongoing research efforts in neuromuscular disease.

Clinical Trials and Neuromuscular Disease

Would you consider being a part of a clinical trial? Why or why not?


Jori Reijonen, Ph.D.
Neuromuscular Diseases
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Not me. I have fibromyalgia and the meds the doctor gave me in the early 90's nearly crippled me. But I would donate and help raise awareness. I took matters into my own hands. I cut way down on the sugar, lost weight and slowly took myself off the meds.

Joined: Jul 2010
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Thanks for sharing your experience, Jana. It is important to be active in our own health care!

Remember, not all clinical research involves medication trials. Some involves other aspects of diagnosis and/or care (i.e., family health history, genetics).


Jori Reijonen, Ph.D.
Neuromuscular Diseases
Joined: Apr 2014
Posts: 1,500
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Chipmunk
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Thanks Jori. I guess I forgot about the other aspects of care. Thanks for opening my eyes.


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