Enrolling in a registry specific to neuromuscular disease will help individuals to be informed about clinical research regarding a specific disease or condition. In turn, disease registries will also aid researchers looking for qualified individuals to participate in research protocols.

Research Registries and Neuromuscular Disease

Have you enrolled in any of the research registries? Why or why not?

Last edited by Jori-ND Editor; 12/17/12 06:37 PM.

Jori Reijonen, Ph.D.
Neuromuscular Diseases