Thanks for the kind words.
I am sorry for your loss. I know it is hard to explain that overwhelming caretaker duties are not a real burden compared with the loss we feel when we lose them. It is unimaginable until we are living it, and even then it is hard to wrap a mind around.
I know how difficult managing long-term sleep disorders can be, but that is just the way life goes sometimes. Lack of Sleep and Rest for Caregivers
I have a feeling I was a strange parent before sleep deprivation set in - but I just don't remember!
SE of SeattleSleep Disorders and Children with Special Needs http://www.bellaonline.com/articles/art33877.asp
Thank you for a great article, Pam. I could identify with so much of what you wrote. My youngest child had a terminal genetic disorder. He died at the age of 12. My adult daughter was diagnosed a few years ago.
In any case, when we were in the midst of caring for my son, we were overwhelmed with the 24-7 care-taking duties. He also had sleep disorders which mean years of sleep deprivation for me. But I loved and love him so very much that it was not a real burden. In fact, I would do it all over again just to have him with us!
But we are a strange family. LOL.
Thank you for writing about this important issue. I know from experience that there are throngs of parents out there who need and who read your articles. They, as I was, are too exhausted and consumed by their care--taking to respond.