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Joined: Feb 2008
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Parakeet
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Parakeet
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I will get the Lyme's test...

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Joined: Aug 2010
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Jellyfish
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Jellyfish
Joined: Aug 2010
Posts: 181
The lyme test is often not accurate. beware of false negatives. The only foolproof test is a live blood analysis.


Arrow Durfee
Stomach Issues
Stomach Issues Forum

"and in the end the love you take is equal to the love you make" John Lennon


Joined: Nov 2010
Posts: 34
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Arrow, I disagree that no etiology means no cure. Most conditions people get are or can be self curing. In fact almost all diseases have at least some people who recover, even if sometimes that is unexpected. Saying no etiology means no cure means you are hopeless and helpless. However we know that most people who get CFS/ FM/ ME/ CFIDs recover on their own to a greater or lesser extent. Any condition that can remit or regress means there is a physiological mechanism. It is up to us who have a condition to do our best to find our way into remission/regression. There are lots of things you can do which can support healing.

Joined: May 2010
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Amoeba
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You guys talk about Fibromyalgia like it is a confirmed dieased. Can someone tell the etiology please as I have not been able to figure one out. I would say that if there is no etiology that the cure will always be a mystery and not the same for everyone... consequently It makes me suspect that all cases of fibro are not created equally and have different causative factors. So a Fibro patient is at the whim of whatever a practitiner may wish to promote in treatment?

Last edited by ArrowDurfee editor; 12/02/10 02:17 PM.
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I believe that this question must make a specialist. I detected fibro two years ago and i am with medication, by the time with vicodin or hydrocodone but i read in findrxonline these medicines are taken with restraint. :)

Last edited by Lilly Abbott; 12/05/10 04:55 PM.
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Fibro and CFS are definitely medical conditions with symptom lists and exclusion criteria. There are recognisable signs like a reduction of mitochondria, changes in white cells and many other things which I don't keep in mind these days. I do know our research showed that the average number of symptoms of a person with CFS was 22 at any one time, though they can change and come and go. CFS has been a recognised medical condition for over 50 years, though some doctors still "don't believe in it", as if that would make the condition go away and the people healthy. A doctor's "belief" in this situation does nothing for their patients. Etiology is variable, though it could be summarised as an "immune assault", with many coming down with it after an infection, often, but not exclusively Epstein-Barr. It has also been diagnosed after vaccinations, pregnancy and other attacks on the immune system. I have also heard of cases occurring after car crashes, but I would expect to have found an underlying infection occurring simultaneously if I had been reviewing those cases. Most doctors treat Fibro and CFS with pain killers and antidepressants where I live, though I've heard of other things in the US. I wouldn't choose any medication, but would seek healing, rather than treatment if I was back in that situation again.

Joined: Jun 2007
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I had Fibro dx'd for 6 years before getting dx'd with CFS. My pain increased and is in the joints more now. I also have a sore throat a lot now. I need to lay down several times a day or I fall asleep sitting up!

I had the new Lyme test calleda western Blot which shows the spirochetes and is more accurate. I still come up negative for it.

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