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Joined: Oct 2007
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My 9 year old daughter was diagnosed with Type 1 Diabetes on Sept 5th. For over a month, the docs had her on Novolog and N, but her numbers were so horrific, I begged them to switch her to Lantus and Novolog. She switched 2 weeks ago. Even though I follow a very strict carb counting, fat and protein tracking diet, her blood glucose shoots off random highs and lows. The nurses tell me that I must be counting wrong, or figuring the insulin doses wrong. In order to demonstrate that this was not the case, I made my daughter eat the exact same items for breakfast, lunch, dinner and her bedtime snack for 5 days in a row. She didn't have any periods of intense exercise, and I didn't observe anything unusual from her day to day routine. Yet, once again, there are unexplained highs and lows that vary from day to day. I am beginning to get frightened at the prospect that I will not be able to manage my daughter's diabetes properly. Can anyone tell me what I am doing wrong?

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I wish you all the luck in the world. Is she seeing a specialist. Just know, that even though you do everything correctly there is a certain percentage of "brittle" diabetics, who have highs and lows and control is extremely difficult.

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Is she sneaking snacks? if the diet is to strick we diebetics tend to cheat!!! ask her to tell you when she eats a no no food. at that age if her friends know she cant have candy they will give it to her because they feel sorry for her. or they will tease her with food she cant have and be mean so she will eat it weather she likes it or not just to shut them up! that is one reason.....

reason two. is she emotional gets stressed out or upset? this will cause ups and down in the bs? try to get her to journal or meditate anything to get her to relax and not worry or stress out over little things also ask the dr how to adjust her meds for the stress out times.

reason three. is she sick? having an infestion can cause the ups and downs alsothe meds for treating the infections...if this is the case dont worry when the meds are gone and the infection clears she will level out. if the meds are preminat ask the dr to find something else that does not cause the up and downs.

reason four. if she drops at night and is high during the day she is getting too much lantus and not enough novalog during the day after meals. ask about cutting her dose of lantus at night so she takes less at night also you can take it in the morning so that it helps level it out better during the day.

reason five. Is she in puberty yet? if she is then it is the hormone fluctuations affecting her levels and when she starts her period she will level out better or you could put her on the pill to regulate her periods if she has started.
she is a little young for this one but I thought I would throw it out there because I was eight when I started so...it could be...

well that is about all the wisedom that I have with out more info... I am a type one diebetic too so Welcome to my world!

Dont get to discouraged it takes time to get this all right and learn all the ins and outs of it. some dr will make you feel horible and treat you like your stupid or treat your daughter like a crimmenal for having a cookie but may advice is dont give up and if this dr is not helping you or your daughter find some one who will. If your Daughter HATES this one find one that she like and is comfortable with because she will have this the rest of her life and she needs someone who understands and can help her through this the last thing either one of you need is a dr or nurse who blames or criazise you! it is not your fault or your daughters fault!!!

Good luck!!!
and tell your little girl that its ok to be normal and happy even with diebeties!

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Could she be alergic to the sweeteners you use? splenda sweet and low equal....if she has a mild alergy to them this can cause the up and downs....

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Hi.
I'm 25 and have diabetes 1. I can assure you that is not easy to avoid lows and highs, though I've learnt how to deal with them over time. Remember that for the body the drop from high to low and vice versa is extremely dangerous!! Always try to avoid a glycaemia higher than 180 and lower than 70. I know it's hard, but it's possible to reduce those episodes, of course sometimes they can happen. Is she taking Lantus? Remember that the number of units of Lantus shouldn't be higher than the number of units of Novorapid (the rapid insuline). Also check the blood level before and after eating (2 hours after). I'm now cheking it less than I used to because I'm accustomed to it and doing well. Are you sure that she's not eating anything you don't know about? apart from the situation of low glycaemia, it's not possible to eat anything without having a quick reaction of the level of sugar. Like for instance, at the beginning I didn't know and thought I could have a sweet sometimes without thinking...well it's not possible!! From 170 I got to 290.
Don't be frightened though, because you'll get used to it and I'm sure she'll learn how to deal with it for the best!
Alessandra

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Hi I have a daughter her name is Wendy. We live in Manitoba Canada. Wendy was diagnosed November 26,2006. With with Type1 Diabetes. Wendy's blood sugar was 58. I never heard of Type1 Diabetes before. We thought she had picked up a very bad flu. When we took her into emergency that day the nurses thought to she had a flu. Thank-goodness the doctor on call that day did an infection test that isn't ordinarily done, and found Wendy was in critical condition she had a 1 in 5 chance of surviving within a 24 hour period. She had fallen into a semi comma and had diabetic ketoacidosis.Wendy was sent out of our small city into a bigger city by air ambulance. I promised Wendy I wouldn't leave her side through this I just was there for her. We got trained before Wendy left the hospital how to care for her at home, where I live this disease is not treated here Type2 is treated here but not Type1 and it often gets confused with type2. Wendy had very unstable blood sugars for a long time and still has but they are lower then they use to be. Some days her blood sugars are in the single digit numbers sometimes are in the teens or higher. Wendy has a great support medical team that she sees often. They never blame they try and help any situation. And only a phone call away if we run into a problem. So be patient with yourself and and your child just do your up most best to take care of her and don't be bullied by people that don't know what you are talking about or understand you or your child be firm and just keep going don't give up. Its frustrating and stressing at times. I had to battle with the local school and other people and professionals that didn't know or understand this disease. Its not like popping a pill and forgetting about it. Wendy takes insulin 4 to 5 times a day. She is so brave and gives her own insulin.

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Originally Posted By: wildbirdy
Hi I have a daughter her name is Wendy. We live in Manitoba Canada. Wendy was diagnosed November 26, 2006. With Type 1 Diabetes. Wendy's blood sugar was 58.... She had fallen into a semi coma and had diabetic ketoacidosis.

... Wendy had very unstable blood sugars for a long time and still has but they are lower then they use to be. Some days her blood sugars are in the single digit numbers sometimes are in the teens or higher. ...

There are two different measures of blood sugar on meters, and in the USA most people use a different one than in Canada or Europe. I believe in the USA meters are set in mg/dl and in Canada/Europe they are set to mmol/L.

So Wendy's blood sugar of 58 with ketoacidosis was mmol/L, very dangerously high, and when her readings are in the single digits in mmol/L, that's lower than 180 in mg/dl.

I checked the ChildrenwithDiabetes.com webpage:

One mmol/L is equivalent to 18 mg/dl.

I should have used the Children with Diabetes converter to come up with this list:

32 mg/dl is 1.8 mmol/L - dangerously low
41 mg/dl is 2.3 mmol/L - dangerously low
76 mg/dl is 4.2 mmol/L - low
124 mg/dl is 6.9 mmol/L - slightly high
149 mg/dl is 8.3 mmol/L;
166 mg/dl is 9.2 mmol/L;
180 mg/dl is 10 mmol/L;
200 mg/dl is 11.1 mmol/L;
216 mg/dl is 12 mmol/L; hmmm
280mg/dl is 15.55 mmol/L; uh oh
320 mg/dl is 17.8 mmol/L - oh, dear
350 mg/dl is 19.4 mmol/L - yeow
400 mg/dl is 22.2 mmol/L - dangerously high
580 mg/dl is 32 mmol/L - dangerously high;
1044 mg/dl is 58 mmol/L - I am so thankful that Wendy had the best medical care.

I think if it's over 600 mg/dl most meter screens read "Call a doctor" and some may say that with a reading under 60, or certainly under 40 mg/dl.

The advice below is gold.

Originally Posted By: wildbirdy

... So be patient with yourself and and your child just do your up most best to take care of her and don't be bullied by people that don't know what you are talking about or understand you or your child be firm and just keep going don't give up.

It's frustrating and stressing at times. I had to battle with the local school and other people and professionals who didn't know or understand this disease.

Its not like popping a pill and forgetting about it. Wendy takes insulin 4 to 5 times a day. She is so brave and gives her own insulin.


It is worrisome that some doctors in hospitals are less educated about diabetes than they need to be. Although there are big differences between Type One and Type Two diabetes, every patient deserves more frequent blood sugar testing and appropriate treatment while they are in the hospital. More training and awareness should be available in offices and clinics, and of course in our schools, too.

My son's blood sugar could drop unexpectedly so quickly that we set his target blood sugar range to 100 - 150, with no panic but immediate treatment at 80-100 and 150-180. Under 80, apple juice immediately with a snack and testing until it was over 100; under 60, two or three cans of apple juice, and sweet snacks until over 100.

If he is unable to drink due to unconciousness or seizures we use the glucagon injection emergency kit. If his blood sugar is over 130 he drinks water or the occasional diet soda; if it's over 180 he also has short acting insulin on a sliding scale.

Of course parents and trained caregivers will give juice, frosting, or glucagon for serious lows (and fast acting insulin for high readings) in hopes of avoiding any wait for an aid car or a trip to the emergency room.

Most first responders do not carry and are not be able to administer glucagon injections, or insulin. Only specialized paramedics are able to put in an IV line, and they often arrive after the first aid car, so that's another reason my son carries emergency supplies with him at all times. Juice, snacks, water and diet soda are included as emergency supplies and of course he carries a meter, test strips and insulin.

My son uses Lantus long acting insulin as well as small doses of Humalog fast acting, temporary insulin, so we are very careful not to mix up the two.

Giving him extra Lantus by mistake puts him in jeopardy for at least 24 hours; giving him a large dose of humalog can be harmful up to the point of being fatal very quickly and last about 3 hours.

He tests his blood sugar 8 to 10 times a day, and I've always tested him once in the middle of the night in case of an unexpected low. They do happen, even with the best of care.

Pam W
SE of Seattle

Type One Diabetes - Insulin Dependent



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