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I have posted a new article,

Speech Therapy, Feeding Therapy and Early Intervention
http://www.bellaonline.com/articles/art47296.asp

If you have any comments or suggestions helpful to other families whose children have food or eating issues, or have benefitted from speech therapy, feeding therapy or other helpful interventions I'd love to read your stories.

Thank you!

Pam W
SE of Seattle


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Hmm, I feel that without early intervention my son would not be able to function as "normal" and would probably still be considered autistic. They thought he was autistic at 18 months, but after a year and a half of intense early intervention they feel that he is not on the spectrum, though he still has his quarks. I do not think he would be doing as well had we not started as early.

Hindsight being 20/20 I can now look back from the time he was born and I see the early warning signs of SID and some Autistic tendencies. His obsession with ceiling fans and lights (non-blinking) to name a few. He also had Motor Planning trouble. From birth he couldn't latch onto to anything -he lost 3 pounds in the first month and I spent over $200 on bottles before finding one that worked (the cheapest thing out there $1 for 6 nipples LOL.)

If I ever have another child and I see ANY of the ealry warning signs I will be starting therapy even earlier.

For those of you wondering, he still recieves feeding therapy and speech. I found a way for his sensory needs to be met through gymnastics. <img src="/images/graemlins/smile.gif" alt="" /> For a long while he recieved speech twice a week, ABA, OT, Feeding therapy, attended a theriputic preschool for children on the spectrum(he will continue through December) and had a teacher coming out every other week to help him with misc. things.

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Quote:
Hmm, I feel that without early intervention my son would not be able to function as "normal" and would probably still be considered autistic. They thought he was autistic at 18 months, but after a year and a half of intense early intervention they feel that he is not on the spectrum, though he still has his quarks. I do not think he would be doing as well had we not started as early.

Hindsight being 20/20 I can now look back from the time he was born and I see the early warning signs of SID and some Autistic tendencies. His obsession with ceiling fans and lights (non-blinking) to name a few. He also had Motor Planning trouble. From birth he couldn't latch onto to anything -he lost 3 pounds in the first month and I spent over $200 on bottles before finding one that worked (the cheapest thing out there $1 for 6 nipples LOL.)

If I ever have another child and I see ANY of the ealry warning signs I will be starting therapy even earlier.

For those of you wondering, he still recieves feeding therapy and speech. I found a way for his sensory needs to be met through gymnastics. <img src="/images/graemlins/smile.gif" alt="" /> For a long while he received speech twice a week, ABA, OT, Feeding therapy, attended a theriputic preschool for children on the spectrum(he will continue through December) and had a teacher coming out every other week to help him with misc. things.


Many moms have found that mainstream Mommy and Me, parks department or parent education classes for children of a similar age confirmed their 'inner voice' or feelings that their sons and daughters needed a little follow up and early intervention to help them along.

I believe many of the games and activities that parent educators and baby class leaders use in teaching moms how to stimulate, relax or play with their babies and toddlers originaged in physical and speech games therapists and teachers created for little ones with diagnosed special needs.

Thank you for sharing your story, and congratulations on your son's progress.

Pam W
SE of Seattle

Speech Therapy, Feeding Therapy and Early Intervention
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Hello, i'm new. my name is Lyndsy.
My son was diagnosed with SPD. He is 8 mths old, and will not eat ANY baby food. He drinks his bottles very well now, but in the begginging he was tube fed for a month.
He was born 1 mnth prematurly, spent almost 4 wks in the NICU, and couldn't latch onto anything.
We started with an OT right away, and she has since noticed self regulation, proprioceptive, vestibular, tactile, and so on with Cole.
I guess what i'm after is do you have any suggestions for trying to feed a baby with SPD?

Thanks,
Lyndsy

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Quote:
Hello, I'm new. My name is Lyndsy.
My son was diagnosed with SPD. He is 8 months old, and will not eat ANY baby food. He drinks his bottles very well now, but in the beginning he was tube fed for a month.
He was born 1 month prematurly, spent almost 4 wks in the NICU, and couldn't latch onto anything.
We started with an OT right away, and she has since noticed self regulation, proprioceptive, vestibular, tactile, and so on with Cole.
I guess what I'm after is do you have any suggestions for trying to feed a baby with SPD?

Thanks,
Lyndsy


Hi Lyndsy,

It sounds like you have already had quite an adventure with your baby boy. I bet he is cute as a button!

I have an article on Sensory Processing Disorder with some links to national organizations and helpful websites:

How Uncomfortable is Your Child? Sensory Processing Disorder
http://www.bellaonline.com/articles/art960.asp

If there is a speech therapist and a nutritionist associated with your son's early intervention center, they would probably be helpful in supporting your little sweetie's first adventures with food.

May I ask whether your son's OT is trained in Sensory Integration physical therapy? I understand that S.I. activities have been helpful for some children I've known who have had SDP issues.

If you live in an area with a preemie support group, or find one online, other moms often share their OT's, Speech Therapist's and Nutritionist's suggestions so you benefit from many professionals' experience and training, and also meet other moms who have similar frustrations, concerns, and senses of humor.

Please keep in touch and let me know about your dear little son's progress and challenges.

Pam W
SE of Seattle


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my son has just been diagnosed with sev ADHD and ODD and he is 4 yrs old and when he was a baby he had alot of developmental delay and he had sensory intergration and i remember having to do deep pressure therapy and joint compressions and all the brushing techniques and i am so glad he has grown out of it but he still has his anger outburs but the doc says its from the ODD but sometimes i feel like i am going to lose control cause he's not the only one i have to take care of i also have 16 month old twins and i get so frustrated and i dont know how to handle him sometimes do you think i might need to start all the deep pressure techniques again or not, you seem well educated in this field


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Originally Posted By: Twinmommy05
my son has just been diagnosed with sev ADHD and ODD and he is 4 yrs old and when he was a baby he had alot of developmental delay and he had sensory intergration and i remember having to do deep pressure therapy and joint compressions and all the brushing techniques and i am so glad he has grown out of it but he still has his anger outburs but the doc says its from the ODD but sometimes i feel like i am going to lose control cause he's not the only one i have to take care of i also have 16 month old twins and i get so frustrated and i dont know how to handle him sometimes do you think i might need to start all the deep pressure techniques again or not, you seem well educated in this field


It sounds like you are feeling overwhelmed, as any mom can be, especially a mom of twin sixteen month olds, a mom of three children under the age of five, *or* the mom of a four year old with ODD/ADHD.

It is important that you talk to someone right there where you live, right away, and let them know that you are feeling overwhelmed and need some support and respite. Don't stop trying to find help. You have probably been putting your children first for so long, you may have not found time to relax and renew yourself, to get together with other moms so you know that none of us is really superhuman, and we all need and deserve good care ourselves.

I am not an expert or a medical professional who could give advice about your son's needs right now, and I urge you to contact your local school district, early intervention specialists, or private therapy providers. Links to helpful resources may be found in articles here at BellaOnline.com

There may be internet discussion groups for families of children with ODD who can give you support and also explain what works most of the time for some of their children.

You might also benefit from joining a group for families of twins, who may have similar challenges even though their twins' siblings may not be diagnosed with anything.

You are raising three wonderful children whose lives can only improve when you find the support and encouragement you deserve while they are growing up.

Something that I thought of often when my children were small was a remark made by a parent ed instructor when my daughter was just a baby. She said, "Remember, your children are not out to get you." She went on to explain that what they were doing is probably age appropriate, typical behavior, caused by their need to communicate through behavior because they don't have the communication skills or self control that older children and adults develop.

I laughed when she said it, because of course babies can't be 'out to get you,' but in the following months I understood exactly what she meant. It was comforting to know I was not being an insufficient mom and that my children were not 'out to get me,' for years afterward.

It can get pretty stessful raising children, any time of the day or night. Even when we know there are strategies and activities that can help us help our children, we can't always maintain a level of calm and self control that would be necessary for us to be 'perfect' moms. Fortunately, our children thrive when we are merely adequate and make occasional mistakes. It's important that we find support, encouragement, help and respite where we can, just to continue on in our quest for perfection - or that comfortble and life affirming level of adequacy that keeps the planet spinning.

I hope you find that some of the comforting exercises that worked well for your son in his early years will help him along right now, and you find other strategies or interventions that will show great benefits as he continues to grow.

Pam W
SE of Seattle

Sensory Integration and Children with Special Needs
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