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#198672 - 08/27/05 02:57 AM
Re: Welcome to the new Autism Spectrum Disorders f
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Newbie
Registered: 08/26/05
Posts: 7
Loc: North Carolina
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Hello again, Yes you are right I was mistaken about who I was talking too, Sry <img src="/images/graemlins/frown.gif" alt="" /> So now that I have the right person I will say to you musicalmom, If there is anything I can do or just to be a shoulder to cry/vent on just type away. That goes for anyone else too :} We are all on different pages and yet the same, but our trials are unlike that of most, so I believe it is our gift to find that we are not alone in this journey, and that we have places and people like us to share, laugh, Cry, vent, and whatever comes over us at any time. I do have a son who is not on the spectrum and so far seems (hmmm dont like this word but for lack of a better term) "Normal" And the trials of Raising two completely different children is um WoW. But both of them are so special in their own ways, just cant stop huggin on them lol. But as I have noticed with alot of mothers like me, our whole families become outsiders, and that is just plain sad, sad for them not me. God gave Alyssa to Me and no one else and i've no doubt she was a gift. So to all the others out there who cant or wont handle our type of people sry but "I dont really want to be your friend either". They are the ones missing out, not me. Sry I have a tendancy of going on and on. Anytime go ahead and vent on me ive got strong shoulders <img src="/images/graemlins/smile.gif" alt="" />
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[color:"red"] God made us who we are, But he also made us knowing we can and should grow! [/color]
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#198675 - 08/27/05 03:39 AM
Re: Welcome to the new Autism Spectrum Disorders f
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Gecko
Registered: 06/26/05
Posts: 435
Loc: Flowery Branch, Georgia
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We divorced because Kent was having an affair. i said I would file for "no-fault" and take the kids to GA with me, because that's where my family was from. He was too busy living it up with the woman he was sc*****, so he said OK. I would have slammed him hard in court had he fought me.
Lots of time has gone by, he's grown up, so have I, and I realized I contributed to the divorce just as much as him, just not at that immediate time, but that IS what got me out here to GA with my family.
The fact that your ex is so non-existent and has instability problems would probably go a long way in court, unfortunately it costs to go to court. <img src="/images/graemlins/frown.gif" alt="" /> Maybe you could check out advocacy groups.
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Michelle Taylor Why me? What did I do to deserve this? (go on, ask)
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#198677 - 08/31/05 02:48 AM
Re: Welcome to the new Autism Spectrum Disorders f
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Gecko
Registered: 06/26/05
Posts: 435
Loc: Flowery Branch, Georgia
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If you could go ahead and pinpoint where you would like to move to, and SHOW how much extra support your son would get from services there, I would think that would go a long way with the court. It would be the same thing if a child had cancer and a mother wanted to move closer to a children's cancer hospital (or it should!)
It might also be helpful to get your child's doctor or psychiatrist on board with you. If they back you up, and are willing to in court, even just in a written statement, it makes an impact.
In Mississippi, children normally get to choose what parent to live with at age 12, my son's psychiatrist said he was not mentally capable of making that decision at 12, to hold off until he was 14. The court agreed. The psychiatrists have that much input.
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Michelle Taylor Why me? What did I do to deserve this? (go on, ask)
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#198679 - 09/05/05 12:18 PM
Re: Welcome to the new Autism Spectrum Disorders f
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Newbie
Registered: 09/05/05
Posts: 24
Loc: Upstate NY
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Hi all! I am new to posting here, although I have read some stuff on here for the last month. I have 2 sons, both are hi-functioning autistic, or PDD-NOS. They are 15 & 20. The younger one is also a brittle diabetic, for 8 years now! I am a single Mom for almost 9 years, & the kids & I get NO SUPPORT SERVICES! I worked p/t until my son was diagnosed w/ diabetes. Our income is hi-end poor, we live on child support & the kids each get a small SSI benefit. No rent subsidy or food stamps, etc. Both kids have been in spec ed 4-ever! Currently, I have been trying to get recreation & respite services through the Taconic DDSO, which is under the OMR/DD, a state agency. The kids were turned down, because their IQ's are too hi! I have seen Moms w/ kids who have no problems other than the Moms were unfit or negligent get a hell of alot of services...I am getting fed-up w/ being constantly broke, socially isolated, stressed out, blah, blah, blah...I do searches on the net & find all these local agencies that are service providers, yet I can't get services cuz the DDSO has turned down my kids! I tried mainstreaming my kids in local places over the years, including youth programs at a local Salvation Army; each time it ended in disaster! Thank God my ex takes them every other weekend & lives nearby. He works for the Railroad & makes a good salary (I should try to get more child support!!!) so I guess I could be worse off. I want to see if life can be better for my kids & myself, so I figured that by posting here, we can network & help each other out! I'd love to find a local support group for other other autistic spectrum parents/families, but it doesn't seem to be in existence! I will welcome any comments, advice, etc. THANX!!!!!
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#198681 - 09/05/05 08:17 PM
Re: Welcome to the new Autism Spectrum Disorders f
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Newbie
Registered: 09/05/05
Posts: 24
Loc: Upstate NY
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Hi & thanx 4 the warm welcome! The state of NY has the Office of Mental Retardation and Developmental Disabilities. The branch that cover my area is Taconic Developmental Disabilities Services OFFICE. Taconic is an Indian word & we have the Taconic Parkway here, so they use that name alot.
Let's see...since my 20 yr. old is still in school, he gets child support till he graduates, when he does, his SSI may increase if he loses support. I will have to go back to court this year & show papers that both kids are disabled to keep my $75 a week in spousal maintenance & maybe even get an increase. My ex makes over $80,000 a year, & I have NOT asked for an increase once in the last 9 years. The reason being if we get an increase in support, the SSI goes down. The end result is the same monthly income, an irritated irrate dad who then won't take the kids every other weekend, & me flipping out! When I go back to court I want to drop my older son from support, get more $$ for my younger son (he is also insulin dependant & on 3 injections a day) as well as more spousal maintenance.
I agree about the abled kids comment you made. Seems like the respite, etc. is based on how ABLED the parents are, not the kids. I am so stressed I may become nuts & then qualify, LOL!
Everytime I hear of some program, I then find we are not eligible for some stupid reason, & the red tape & paperwork seems to make it almost impossible, so I try to take care of everything myself. I am the queen of bargain shopping!
I also have been told by some idiotic people that I should get a job & a life by strangers, & even my own Mom! I have NO CHILDCARE & legally cannot leave a diabetic PDD kid alone, unless I want to go to jail & lose custody, or risk having something bad happen to my son.
I would definitely consider my kids living in a group home or supported apartment after the age of 21, as you have say so over where, when, how & why at that point, & can yank them out of anything that is unsavory.
Both are in special ed 1:8:1 classes & have strong academics.
There is an ARC in my area & they can't do a blessed thing for either kid unless approved by the DDSO, who holds the purse strings...
I would love to go on Oprah or Dr. Phil & clue some people in on this!
There is an old saying "No good deed goes unpunished!" Yes, a good mom to disabled kids gets no help...if moving would benefit the kids, I would do so. I have even wondered about Canada or Norway.
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